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[URL]http://www.medicalnewstoday.com/index.php?newsid=6892[/URL] for the full article.
I saw an article some months ago about the molecular patch mentioned in the above article and tried not to get my hopes up too much ...
Fortunately I don't have the Duchene form of muscular dystrophy (which invariably kills people by the age of 20 or so), but if the treatment works for them then there's no reason why it won't work for us facioscapulohumeral sufferers.
For the last 17 years I've been on a voluntary research program - once a year I go to the orthopaedic hospital in Oswestry and let them do various tests on me. The pay-back I get is that I'm near the front of the queue should a cure or a treatment be developed.
Feel free to reply using words like "Cool", "Good news" and "If you're cured can I come round and kick your ass?".
[URL]http://www.medicalnewstoday.com/index.php?newsid=6892[/URL] for the full article.
I saw an article some months ago about the molecular patch mentioned in the above article and tried not to get my hopes up too much ...
Fortunately I don't have the Duchene form of muscular dystrophy (which invariably kills people by the age of 20 or so), but if the treatment works for them then there's no reason why it won't work for us facioscapulohumeral sufferers.
For the last 17 years I've been on a voluntary research program - once a year I go to the orthopaedic hospital in Oswestry and let them do various tests on me. The pay-back I get is that I'm near the front of the queue should a cure or a treatment be developed.
Feel free to reply using words like "Cool", "Good news" and "If you're cured can I come round and kick your ass?".