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"More money to fight muscular dystrophy"

"Cutting edge research into the fatal muscle wasting condition Duchenne muscular dystrophy, which could lead to the first UK safety trial in humans, has received £1.6 million Government funding it was announced today."

[URL]http://www.medicalnewstoday.com/index.php?newsid=6892[/URL] for the full article.

I saw an article some months ago about the molecular patch mentioned in the above article and tried not to get my hopes up too much ...

Fortunately I don't have the Duchene form of muscular dystrophy (which invariably kills people by the age of 20 or so), but if the treatment works for them then there's no reason why it won't work for us facioscapulohumeral sufferers.

For the last 17 years I've been on a voluntary research program - once a year I go to the orthopaedic hospital in Oswestry and let them do various tests on me. The pay-back I get is that I'm near the front of the queue should a cure or a treatment be developed.

Feel free to reply using words like "Cool", "Good news" and "If you're cured can I come round and kick your ass?".

Hurrah :-D

Timmargh wrote:
> facioscapulohumeral

You have what stuck in your ear?

Yeah good luck. There was somewone that used to be at my school who had it, VERY intelligent guy, wrote a novel by the time he was 16 I hear.

I think they probably need much more than £1.3m, but at least it is a start. All the best to fighting these illnesses :)

Notorious Biggles wrote:
> That is great news indeed. Still not enough really though.
>
> I really hope they can get a cure sorted out for a few reasons. #1 so
> I can come round and kick your ass.

Me too, I feel like dishing out a good ass kicking. Can we book places in the line? :P



#3 MD along with MS (totally different illnesses, but similar symptoms)
> have to be amongst the most horrible conditions out there.

Agreed, 1.3 million is a good deal but hopefully more will be put in in the not-too-distant future.

Cool, good news. Can I come round and kick your ass anyway?

That is great news indeed. Still not enough really though.

I really hope they can get a cure sorted out for a few reasons. #1 so I can come round and kick your ass. #2 I have a friend with MD. #3 MD along with MS (totally different illnesses, but similar symptoms) have to be amongst the most horrible conditions out there. #4 If they manage to use this technique successfully then hopefully they could use it for other illnesses as well.

Antisense oligonucleotides kick ass!

Good news about the possible cure. All the best :)

Forest Fan wrote:
> What symptons do you suffer from?
*****

Weakened and slowly wasting muscles. The form I have, FSH, is only supposed to affect my face, shoulders and upper-half of my arms, although it basically affects every external muscle I have - face, arms, legs, back, neck etc.